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Home > Dystonia Links
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Links to Dystonia resources.
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Mission
The mission of the Dystonia Medical Research Foundation is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families.
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Gene Reviews of Dopa Responsive Dystonia includes information on DRD including average age of onset, disease characteristics, diagnosing and testing, clinical descriptions, neurochemistry, etc.
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Objectives: Educate health professionals about movement disorders and their clinical management, Develop resources and comprehensive educational materials about movement disorders for the world healthcare community, Assist professionals and patients in establishing and maintaining support groups.
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Information on the drug, Sinemet, which is used for treatment of Dopa Responsive Dystonia.
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The PND Association is a non-profit, voluntary organization, dedicated to helping children and families who are affected by a disease of neurotransmitter metabolism.
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Most Popular Links
Medication Sinemet
Information on the drug, Sinemet, which is used for treatment of Dopa Responsive Dystonia.
United Cerebral Palsy Organization
One of the largest health charities in America. UCP's mission is to advance the independence, productivity and full citizenship of people with Cerebral Palsy and other disabilities.
World Research Foundation
The World Research Foundation will send you library packets on a variety of medical needs ranging from Cancer to Down Syndrome. The material is gathered from books, periodicals, medical journals, etc. It includes alternative and traditional medical approaches.
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New Articles
Arizona Republic
Arizona Republic runs another article on Noah and Alexis
News Channel 3
News Channel 3 will do a live interview with the Beerys on Monday, September 3rd on Good Morning Arizona at 8 am.
Discovery Health Channel
Discovery Health Channel's "Mystery Diagnosis" will air a piece on Noah and Alexis
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